A dear friend of mine, Lori, has just discovered that her daughter Katie Starr has Cone-Rod Dystrophy, a disease which will eventually rob her of her sight. To receive this diagnosis for your child is unimaginably heart-wrenching. My heart goes out to sweet Katie Starr and to the whole family, and I’m hoping to raise awareness and generate as much help as possible by posting an excerpt of Lori’s message here:
I am a mother like many of you; a mother to three amazing children. Our Katie Starr was diagnosed last week with Cone-Rod Dystrophy; a hereditary retinal disorder that will rob her of her sight and leave her in darkness. First the cones in her eyes will be destroyed and thus her light and color perception and then the rods will follow which are for night and peripheral vision. We do not have a time line but we understand that the earlier you are diagnosed then the chances are the earlier the sight will ebb away. It is a rare disease; one of many such retinal disorders that remain without a cure.
The Foundation Fighting Blindness has a way for me and for my friends far and wide to not only help Katie Starr but any person who may be left totally in the dark due to a hereditary eye disease. The foundation holds 5K walks all over the country on different dates and the South Florida walk is October 23rd at 10:00 am in Fort Lauderdale. I have put together a team and in five days we have a team of people joining us to walk in solidarity but also over $4,000.00 in donations.
You can make a donation of ANY amount at the following link or join us for the walk: TEAM KATIE STARR
Thank you so much for reading this and sharing it with others. You never know who may read it and how it can alter the course of one little girl’s life and many others in her shoes. As cliche as it sounds, together we can make a change and bring light into people's lives.
Lori Weinstock / Our family website is Stress Is the New Black